Please forward far and wide.
Parents, Grandparents and Friends,
there's just a few more days to push for the
Combating Autism Act
We have only until July 11th to influence Senators about what our kids need in this Bill!
Background: As you know, the autism groups in the community wrote and reached consensus on a new Combating Autism Bill in December which was presented to Senators in early January. The plan was to substitute our bill for the original Combating Autism Bill.
Senators have since been working on the language. We have been following their progress with great interest for several months now and have heard that the senators expect to present a new version of the CAA Bill to the HELP Committee next week.
YOUR IMMEDIATE ACTION IS NEEDED The environmental language so important for research that could really help our children may be deleted, and money earmarked for the National Institutes of Environmental Health Sciences could be cut. We need you to put pressure on the HELP Committee – particularly four Senators – to make sure THE LANGUAGE WE WANT STAYS.
WHAT WE WANT:
We want the Combating Autism Bill to pass as revised by the autism community that includes:
- $6 million solely devoted to the NIEHS every year for the next five years.
- $44 million allocated to Autism Centers of Excellence and NIH Environmental Research Centers every year for the next five years.
- The environmental research language should stay in the bill as written:
Autism Centers of Excellence-
'(1) IN GENERAL- In carrying out subsection (a)(1), the Director of NIH shall award grants and contracts to public or nonprofit private entities to pay all or part of the cost of planning, establishing, improving, and providing basic operating support for centers of excellence regarding research on autism.
'(2) RESEARCH- Each center of excellence that receives funding under paragraph (1) shall conduct basic and clinical research into autism. Such research—
'(A) shall be conducted in the fields of developmental neurobiology, genetics, epigenetics, pharmacology, nutrition, immunology, neuroimmunology, endocrinology, gastroenterology, and toxicology; and
(B) should include--
'(i) investigations into the cause, diagnosis, early detection, prevention, control, treatment, and cure of autism;
'(ii) research on high-risk infant siblings; and
‘(iii) research on a broad array of environmental triggers which may have a possible role in autism, including but not limited to vaccines, other biological and pharmaceutical products, and their components (including preservatives).
- We want the oversight and safeguards language, whereby the autism community has representation on official government committees, to stay in the bill---specifically more representation on the Interagency Autism Coordinating Committee and a newly formed Autism Advisory Board made up of community members and scientists.
- We want to keep language that dictates to the CDC how allocated money could be spent. We want the language inserted which reads: “for the purpose of collecting and analyzing information on the number, incidence, incidence trend over time, by birth year, retrospectively and prospectively, for autism spectrum disorder, classic autism, and PDD-NOS, correlates, and causes of autism and related developmental disabilities.”
[[Parents, this will make sure that data reported are comparable over time and that there is no “inflation” in diagnostic criteria to discourage CDC from unreasonably trolling for cases.]]
- In short, we want the autism community consensus bill as written by the autism community groups who are dedicated to finding treatments and a cure for our children.
WHAT YOU CAN DO TO IMPACT THIS BILL:
We hear that the AAP is actively lobbying behind the scenes to take the environmental language out of this bill. http://www.huffingtonpost.com/david-kirby/doctors-against-research_b_17726.html They do not want NIH to look into vaccines or their components. This is wrong. Autism has been proven to be an environmental disorder. We demand that they look into all environmental triggers, including vaccines and their components!
If AAP gets their way, the bill will likely pass with tons of money going to the CDC to count our children but no money going to research that directly treats and leads to a cure for our children. It is time we stand up and let our opinions be known!
PLEASE WRITE, E-MAIL FAX AND CALL THE MEMBERS LISTED BELOW. PLEASE DO THIS ASAP!
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HERE IS A SAMPLE LETTER...
Senator Mike Enzi
290 Russell Senate Office Building
Washington, DC 20510
July 4, 2006
Dear Senator Enzi,
I am writing to you today as a concerned citizen and parent of a child with an autism diagnosis. The Combating Autism Act is critical legislation that must go forward as currently written if this nation is to begin addressing the needs of the one in 166 children now diagnosed with autism. Most importantly, the provisions for funding environmental research must remain in this legislation if the affected children are to have hope for recovery.
There can no longer be any doubt that exposure to environmental toxins is the single most important factor in the huge rise in neurological disorders among America's children. My child, like so many others, was born in complete good health until the repeated injections of mercury-containing vaccines began to take their toll, causing loss of previously acquired speech and motor skills, and severe behavior changes. On six separate occasions before the age of 18 months, my son was injected with amounts of mercury greatly in excess of federal mercury exposure guidelines. The onset of symptoms that eventually led to an autism diagnosis is completely consistent with that for mercury toxicity.
The HELP Committee upon which you sit will soon be reviewing the Combating Autism Act. It is imperative that the funds earmarked for the National Institute of Environmental Health Sciences be left in this legislation. Without this funding, the most promising area of research for my child and hundreds of thousands of others will go unexplored. I also ask that you keep the words “vaccines and their preservatives” in the bill. I am afraid that unless the Senate specifically asks for this science, this vital area will be ignored.
Our legislators must do the right thing by the children and families struggling with autism and related disorders by enacting this legislation with the environmental provisions left intact.
Sincerely,
Your name here
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PENNSYLVANIA AND DC-AREA PARENTS, YOUR HELP CAN BE PIVOTAL IN THE OUTCOME OF THIS LEGISLATION
If you live in Pennsylvania, you know that Sen. Ric Santorum is in a desperate battle to retain his Senate seat. Passage of the Combating Autism Act has become a major campaign goal. His office needs to hear directly from constituents that retaining the vaccine language is imperative. Please also request that Sen. Santorum write a letter to HELP Committee Chairman Sen. Mike Enzi demanding that the environmental provisions be left intact, including the vaccine language.
Parents in the DC area, we ask that you personally visit as many of the offices listed below as possible. Faxes and phone calls make a difference, but face-to-face contact leaves a lasting impression that can steer the direction of this bill. With more pharmaceutical lobbyists on Capitol Hill than members of the House and Senate combined, our kids desperately need as many of us as possible to be a presence for them as this bill is being deliberated.
We suggest you call AND fax the first four and fax the rest. Be sure to tell some of your child’s story and include your name and address on the letter.
Here are the Members we need to target:
(Important four to fax and call – these four are working on the changes in the language)...
Enzi, Mike (R - WY)
290 RUSSELL SENATE OFFICE BUILDING WASHINGTON DC 20510
Phone: (202) 224-3424
Fax: (202) 228-0359
E-mail: senator@enzi.senate.gov
Santorum, Rick (R-PA)
511 Dirksen Senate Office Building
Washington, DC 20510
Tel: 202-224-6324
Email: http://santorum.senate.gov/public/index.cfm?FuseActionfiltered=ContactInformation.ContactForm&CFID=3081883&CFTOKEN=24059619
Kennedy, Edward - (D - MA)
317 RUSSELL SENATE OFFICE BUILDING WASHINGTON DC 20510
Phone: (202) 224-4543
Fax: (202) 224-2417
Email: senator@kennedy.senate.gov
Dodd, Christopher (D - CT)
448 RUSSELL SENATE OFFICE BUILDING WASHINGTON DC 20510
Phone (202) 224-2823
Fax (202) 228-1683
E-mail: http://dodd.senate.gov/webmail/
Republicans on the HELP Committee:
Gregg, Judd (R - NH)
393 RUSSELL SENATE OFFICE BUILDING WASHINGTON DC 20510
Phone: (202) 224-3324
Fax: (202) 224-4952
E-mail: mailbox@gregg.senate.gov
Frist, William (R - TN)
509 Hart Senate Office Building
Washington, DC 20510
Phone: 202-224-3344
Fax: 202-228-1264
E-mail: http://frist.senate.gov/contact.cfm
Hatch, Orrin (R-UT)
104 Hart Office Building
Washington, DC 20510
Tel: (202) 224-5251
Fax: (202) 224-6331
Email: http://hatch.senate.gov/index.cfm?FuseActionfiltered=Offices.Contact
Sessions, Jeff (R-AL)
335 Russell Senate Office Building
Washington, D.C. 20510-0104
(202) 224-4124 - Phone
(202) 224-3149 - Fax
Email: http://sessions.senate.gov/email/contact.cfm
Burr, Richard (R-NC)
217 Russell Senate Office Building
Washington, DC 20510
Phone: (202) 224-3154
Fax: (202) 228-2981
E-mail: richard.burrnc05@mail.house.gov
Isakson, Johnny R- GA
120 Russell Senate Office Building
Washington, DC 20510
(202) 224-3643
Fax: (202) 228-0724
Email: http://isakson.senate.gov/contact.cfm
Alexander, Lamar (R-TN)
UNITED STATES SENATE WASHINGTON DC 20510
Phone: (202) 224-4944
Fax: (202) 228-3398
E-mail: http://alexander.senate.gov/index.cfm?FuseActionfiltered=Contact.Home
Roberts, Pat (R - KS)
302 HART SENATE OFFICE BUILDING WASHINGTON DC 20510
Phone: (202) 224-4774
Fax (202) 224-3514
Email: http://roberts.senate.gov/e-mail_pat.html
Ensign, John (R - NV)
364 RUSSELL SENATE OFFICE BUILDING WASHINGTON DC 20510
Phone: (202) 224-6244
Fax (202) 228-2193
E-mail: http://ensign.senate.gov/forms/email_form.cfm
DeWine, Mike (R - OH)
140 RUSSELL SENATE OFFICE BUILDING WASHINGTON DC 20510
Phone: (202) 224-2315
Fax (202) 224-6519
E-mail: http://dewine.senate.gov/request_form.cfm
Democrats on the HELP Committee:
Harkin, Tom (D - IA)
731 HART SENATE OFFICE BUILDING WASHINGTON DC 20510
Phone (202) 224-3254
Fax (202) 224-9369
E-mail: http://harkin.senate.gov/contact/contact.cfm
Mikulski, Barbara (D - MD)
709 HART SENATE OFFICE BUILDING WASHINGTON DC 20510
Phone: (202) 224-4654
Fax (202)224-8858
E-mail: http://mikulski.senate.gov/contactme/mailform.html
Bingaman, Jeff (D - NM)
703 HART SENATE OFFICE BUILDING WASHINGTON DC 20510Phone:
Phone: (202) 224-5521
Fax (202) 224-2852
E-mail: http://bingaman.senate.gov/Contact_Me/e-mail_form.htm
Jeffords, James (D-VT)
413 Dirksen Senate Office Building, Washington, D.C. 20510
Phone: (202) 224-5141
Fax: (202) 228-0776
Email: http://jeffords.senate.gov/contact.html
Murray, Patty (D - WA)
173 RUSSELL SENATE OFFICE BUILDING WASHINGTON DC 20510
Phone: (202) 224-2621
Fax: (202) 224-0238
E-mail: http://murray.senate.gov/email/index.cfm
Reed, Jack (D - RI)
320 HART SENATE OFFICE BUILDING WASHINGTON DC 20510
Phone: (202) 224-4642
Fax (202) 224-4680
E-mail: http://reed.senate.gov/contact/thoughts.cfm
Clinton, Hillary (D - NY)
476 RUSSELL SENATE OFFICE BUILDING WASHINGTON DC 20510
Phone: (202) 224-4451
D.C. Fax (202) 228-0282
Email: http://clinton.senate.gov/contact/webform.cfm
Think Autism. Think Cure