Hello Karla
I am sorry for not getting back to you sooner. I have over 100 threads on three forums and sometimes I miss a notification.
I agree with you completely. The hippa laws are unfair and really complicate the lives of not only those with a mental illness but their families as well.
About two years ago, I lost my fiancee to the mental health system along with her family. She suffers with bipolar illness and schizophrenia. As long as she was on her medication, she was fine. Once she quit taking her meds, she quickly became in dire need of help. Over a period of three months of trying to get her the help she needed, her condition worsened to the point where she had to be admitted, involuntarily. Even though I was the one who signed the 302 papers, I was not permitted any information about her. After 12 days she was discharged. I found this out from other patients on her ward when I tried to call her. Neither myself nor her family have ever been able to get any more information about her since. We literally do not know if she is alive or dead.
Now, here is the way the system works. As you might expect, it comes down to money, like always. When a person is commited, they are most often declared not capable of handling their own affairs. Often times they will qualify for disability based on their illness. This makes it nessesary for them to have a representative payee. Without a signed release by the patient, no one can gain access to information of any kind, including disability settlements and payments. The hospital will assign a representative payee for the patient. Always someone on the staff. This way, all money paid to the patient is claimed by the hospital because the representative payee signs it over to them. The state hospital that I was a patient at for 9 months would allow the patient $60 per month for personal expenses. The rest of their money went towards paying the hospital bill. Now, if the family of the patient was able to contact the patient an agreement could be made for that family member to be the representative payee. Thus limiting the chances that the hospital would ever be paid for their services.
Now. Here is the way to avoid all of these problems legally. Karla, I do not know your personal history. I don't know if you have been or will need to seek in patient treatment. Regardless though, while you are feeling well and not in a hospital, choose someone that you trust completely. A family member, a relative or even a friend. Prior to being placed in the hospital, sign a release so that this person can gain access to your information and where abouts. You can assign this information to as many or as few people as you wish. iF Your illness qualifies you for disability payments or if you have any other sources of income. make this person your representative payee. This way, they will have access to your information and they will be responsible for safe guarding your money. When you are feeling better, you may want to discuss with your payee, payment arrangements of some kind for your hospital bills. If you do not plan ahead for this, the hospital will remain in controll of your finances. If this is the case, you will most likely be discharged from the hospital into a half way type housing arrangement and you will not be able to aquire enough money to get back on your feet. If you have a payee, you will most likely have several thousand dollars in your bank account that will help you get established once you are discharged from the hospital.
Karla. I hope this answers some of your questions. If you have any other concerns, please don't hesitate to ask me. If I don't have an answer for you , I will find it for you. I have resources from all over the country and I will not stop looking untill we find some answers for you.
Best of luck to you Karla and remember, you are not alone. I am only one of 50,000,000 of your friends in the U.S who has suffered with a mental illness. Things can get better and usually do. You just have to find your way through the system or find someone else who has found their way through and are willing to help.
May a smile follow you to sleep each night,,,,,,,,,,,,,,,,,,,,,,,,,,,,,
and be there waiting,,, when you awaken.
Sincerly, Bill Vanderbilt
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