Hello Robert
Thank you once again for sharing this most important information. Slowly but surely we are making some progress with regard to understanding more about autism and it's causes and cures. The following article that I have posted here is some really good news about recent legislation being passed through congress that will greatly expand research and treatment programs for those affected by autism. We have been advocating for this for a long time.
ASA-NET
December 8, 2006
ASA Advocacy Update
ASA Applauds Passage of Combating Autism Act
U.S. Senate votes to approve nearly $1 billion for autism research and education; CAA on its way to the President
The Autism Society of America (ASA) commends the U.S. Senate for passing S. 843, the Combating Autism Act, on Thursday evening. This critical legislation authorizes almost $1 billion through 2011 in federal funding for autism-related research, early detection and intervention.
“ASA thanks Chairmen Enzi and Barton for their leadership,” said Lee Grossman, ASA President and CEO. “This is only the beginning of our commitment to ensure federal funding to support and serve all affected by autism.”
S. 843, authored by Senators Santorum and Dodd, first passed unanimously in the Senate on August 3, 2006. The U.S. House passed an amended version on December 6, 2006. Key provisions of the bill include:
- Developing and implementing a strategic plan for research related to autism spectrum disorders;
- Reauthorizing Autism Centers of Excellence and providing funds to the centers for coordination of services and information for patients;
- Supporting basic and clinical research into the fields of developmental neurobiology, genetics, epigenetics, pharmacology, nutrition, immunology, endocrinology, gastroenterology, psychopharmacology, and toxicology;
- Improving coordination of the various federal, State, and local supports and services available to persons with autism and families affected by autism;
- Increasing the number of providers that can screen, diagnosis and provide interventions to persons with autism; and,
- Promoting research to determine evidence-based best practices for diagnosis, early detection, prevention, intervention and possible/potential cure for autism spectrum disorders.
“Autism has been neglected for far too long,” continued Grossman. “Thanks to the Combating Autism Act, federal agencies will have the resources they need to coordinate autism policy and to develop better diagnostics, treatments, and interventions.” ASA commends the hard work of its members and parents nationwide, who mobilized tens of thousands of emails, letters and press coverage to convince Congress of the importance of supporting this bill before convening.
Autism is a complex developmental disability that affects an individual in the areas of social interaction and communication. Autism is a spectrum disorder that affects each individual differently and to varying degrees of severity. As many as 1.5 million Americans - children and adults - are thought to have autism today.
ASA is the oldest and largest grassroots organization within the autism community. Today, more than 100,000 members and supporters are connected through a working network of nearly 200 chapters nationwide. ASA is dedicated to increasing public awareness about autism and the day-to-day issues faced by individuals with autism, their families and the professionals with whom they interact.
Senate Votes Today on Lifespan Respite Care Act
ASA Supports Funding for National Policy to Help 50 Million American Caregivers
The U.S. Senate today will vote to approve the Lifespan Respite Care Act (2pm EST). The bill, introduced by Energy and Commerce Health Subcommittee Vice-Chair Michael Ferguson (R-NJ), Rep. Jim Langevin (D-RI) and several members of the Energy and Commerce Committee, authorizes competitive grants to states to make quality respite available and accessible to family caregivers, regardless of age, disability, or family situation. For families of minor and adult children with autism, respite can help provide the relief necessary to maintain their own health, bolster family stability, keep marriages intact, and avoid out-of-home placements.
“Families of children with autism consistently rank respite as one of their greatest family support needs, yet in many states and regions respite is in short supply or unavailable due to inadequate and uneven funding, lack of provider capacity, and resulting waiting lists for such services,” said ASA President and CEO Lee Grossman. “Families take great joy in supporting their child with autism; however they need regular breaks from their care giving responsibilities.”
Research indicates that families of children with autism have greater parental stress due to challenges in caring for their children. Because of the additional care required by a child with autism, families identify respite care as a basic need, with the need increasing as the child gets older. Families who report less stress usually are the recipients of formal family support services, such as respite care.
“We know from experience that a small investment in respite and other family support services makes an enormous difference in the lives of children and families,” said Dr. Cathy Pratt, Chair of the ASA Board of Directors. “Passage of the Lifespan Respite Care Act is a good step towards the development of a comprehensive system of services and supports for individuals with autism and their families.”
The Lifespan Respite Care Act is based on model Lifespan Respite Systems in Oregon, Nebraska, Wisconsin and Oklahoma. These systems provide easy access to an array of affordable, quality respite services; ensure flexibility to meet diverse needs; and assist with locating, training, and paying respite providers.
ASA Education Update
The Autism Advocate: ASA's Premier Magazine on Autism Spectrum Disorders
This is the one you've been waiting for! The 5th edition of the Autism Advocate, a special issue on environmental health and autism, is off-press and will hit homes in the next 2 weeks! The first publication of its kind, this issue convenes pre-eminent researchers and professionals to discuss the spectrum of environmental impacts on autism.
Don't let your friends and family miss out on the Autism Advocate! Forward the link below and get them informed!
Already a member? Go to www.autism-society.org/magazine to read the Autism Advocate online.
ASA Conferences Update
Save the Date
2007 ASA National Conference
Be sure to mark your calendar for the 2007 ASA National Conference. The conference will be held at The Westin Kierland Resort & Spa in Scottsdale, AZ, July 11-15, 2007. Visit www.westin/kierland.com and see the facilities of this spectacular 5-star hotel. The Westin will be providing attendees with conference rates starting at $129. This is a great conference to which to bring your whole family.
ASA has closed the call for papers. We are excited to announce that ASA received more than 250 paper submissions for sessions this year, and are now in the reviewing process. Registration is expected to open in January. Save the date...you will want to book your space early this year!
More information about the 2007 ASA National Conference will be posted shortly. If you have questions concerning the conference, please contact us at conference@autism-society.org.
ASA Merchandise
Holiday Gift Giving
**** Sponsored by the Autism Society of Connecticut: Your holiday gift puzzle is solved with handmade autism awareness pieces from the "Real Jewelry to Make a Real Difference" collection. With new styles being added regularly, you can choose from a full assortment of sterling silver or 14K gold pieces that feature the autism icon, the puzzle piece. This purchase doubles your gift giving power as 100% of the profits benefit programs and services for families and persons on the autism spectrum. Be sure to place your order by December 18th to ensure Christmas delivery! Go to http://www.autismsocietyofct.org/. ****
The holiday gift-giving season is upon us, so while you're thinking of family and friends, why not consider purchasing memorable holiday gift items from ASA? Plus, we’ve got something for everyone else on your list too, from coworkers, to valued employees or business colleagues. Take a look ASA’s unique gift items for everyone on your list.
The ASA Greeting Card Series: Spread your well wishes and some holiday cheer while supporting ASA! Purchase your holiday greeting cards by visiting www.autism-society.org/cards.
Holiday ornaments: Choose one of ASA’s collectable ornaments and add a special touch to your tree or wall. Selections include "God’s Butterfly," designed by Celebrating Talents participant Steven Knox; "Jollification," inspired by the painting, and the endeared autism ribbon. These beautiful ornaments will be cherished year after year. Visit www.autism-society.org/store.
ASA tie: Be sure not to forget the special dad, grandfather, uncle or teacher on your list! The "Putting the Pieces Together" tie, made of high quality silk, is imprinted with the Autism Society of America's multi-colored puzzle piece logo. Visit www.autism-society.org/store.
The "Jollification" scarf: Commemorate her commitment to the autism cause by giving her the beautiful "Jollification" scarf, inspired by the painting by famed artist Metin Bereketli. Visit www.autism-society.org/store.
"Art as a Catalyst:" The Gary Rosenthal Collection: This gorgeous line of hand crafted, fused glass and metal artwork is back by popular demand! Choose from an assortment of earrings, necklaces, money clips, book marks, Christmas tree ornaments and dreidels. Limited supply available! Visit www.autism-society.org/store.